Ninety percent of what I say at the moment are simple commands; “eat your food”“drink your water”“come on”“sit down”“stand up” On a good day it is peppered with “please”, “thank you”, and “you’re such a good girl”, on a bad day they are short and sharp, they hold any manner of things, anger, rage, frustration, […]
I’ve become somewhat accustomed to loss, as humans I think we often tend to push our losses to the side and not deal with them, but as a caregiver I am constantly dealing with loss. It started with the loss of my Dad in 2013, and since then it has ranged between a drop of […]
One day you will become the embodiment of atua wāhine.It will be in the surrender that she makes her home in you.One day she will arrive and settle in your soul,early on you will go to war with her;How dare she come into your house!Most days you will not even know she calls you home.She […]
There is the all too familiar saying “time heals everything..” is it true? Maybe, I don’t think so. I don’t think you ever heal. You learn to cope better, manage every day life better, you learn to smile again and re-emerge as the person everyone once you knew you as.
I am hurting. The pain is radiating from my heart and spreading down to the tips of my fingers and toes. It feels as if my hair aches and my finger nails are digging into me. This pain and grief feels familiar, common but also unfamiliar. I have not bathed in grief for a long […]
Dear Mama, This morning your delusions had the best of you, when I came in to say Hi you were so sad. I sat with you and asked you what was wrong, with your beautiful eyes looking up at me, you whispered ‘I think I have to go away.’ I reassured you that you were […]
This time of year is a hard time for families caring for someone with alzheimers/dementia. Services shut down or go to a skeleton staff, family and friends go away for the holiday season, it is hot, tiring and the days are long. Carers are often exhausted and will look that way. I know this from […]
As hard as it is, sometimes it is harder to be away from you. I miss your connection to me I miss you knowing me when you are with me and that is hard, but when you aren’t with me I just miss you and I don’t know which is harder.