With a little help from my friends…
Kia ora e te whānau,
It has been a while since I have updated this blog, things have been increasingly busy and unfortunately stressful. This year has seen many ups and downs, one was having to move from the home we had been in for 5 years. Fortunately, we found a beautiful new home within our price range, in the same area we were living in. It is a beautiful house with wonderful views and lots of lovely birds.
However, what I wanted to write about is the recent predicament I have found us in, our funding with the ADHB came up for review in August, for the past 5 years we have had access to 52 days of respite which was partially funded. I was able to afford the partial funding and made it work. This year the ADHB made the decision to reduce the number of days of respite we have available and increase our cost, thus making respite unaffordable. For mine and Martha’s safety and wellbeing access to respite is crucial, having the ability to have a night or 2 off here and it is invaluable, and the thought of not being able to access this is very scary.
So after some consideration and lots of talking I created a give-a-little page to ask for a little help from our amazing community. I now have between a $60 and $200 shortfall for every day I get respite for Martha, ideally I have upto 4 days a month to have for myself and to do things I need to do. Whilst I can maintain this cost for the next few months by using our savings it is not sustainable over the longterm. I do hope that next year I will hopefully be in a better financial position, but for now I need to navigate the next few weeks of caregiving.
So here it is, I am asking for support to raise around $2000, this will get us through to the next few months and then we can reassess. It’s hard for me to ask for help and so I feel proud of myself that I am reaching out and asking. Everything and anything helps, I am so grateful for all the support thus far and I wish I didn’t have to ask, but I do believe that caring for Mama at home is the best option for her and her quality of life.
Thank you so much for the ongoing support! Always with Love, Kyrin and Martha xx